Monday, 4 May 2020

Broken Monday


A bit like my spade that broke in half today when I was digging, I feel broken.   This was the final straw for me today and after a few choice words that can't possibly be repeated, I collapsed on the ground and had a cry.  Perhaps a bit of an over-reaction, but just another side effect from steroid withdrawal.  I've since done some research and it looks like that is definitely what is going on, I can pretty much tick all the boxes, pain all over body/joints, aching, stiffness, lethargy, fogginess, depression of sorts, increased headaches.  Still undecided whether to see if I can ride it out a bit longer, or see if I can go back on them and withdraw even slower...  Needless to say I didn't go on my walk today.

Badgers had dug up some of my potatoes, and more of the lawn.

I still haven't seen them!

Prior to my minor breakdown, I had decided to cut out bread from my diet again to see if that will help (although I am doubting it now after reading up about steroid withdrawal).  It might a bit...


Normally some of what is on my plate would have gone in a home made bread sandwich.  

I did produce two more bears.



I've decided if I am going to end up not being so active physically then I will make a few of these to eventually go in my Etsy shop.  Just trying to think of a good name for them "......................  bears"


In the evening when I cooked dinner I decided to make some blueberry muffins as I had the AGA on I wanted to put it to good use!  It feels a bit crazy having to put this huge oven on for just the little amount I cook myself each dinner time.


Sorry for the whinge!  Hopefully normally positive service will resume soon.

14 comments:

  1. Material bears...................they are beautiful, I always prefer bears not made with fur.

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    1. Thanks so much, I am really enjoying making them, and yes I think I am liking the fabric ones very much.

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  2. You have achieved so much..have you heard about Spoons? Friends with MS and fibromyalgia use this..you have a number of spoonsful of energy every day.and it is a matter of allocating an amount of spoonsful to each job..and leaving some over every day.
    It does sound that you are right about steroid withdrawal symptoms. It isn't easy to withdraw from many sorts of medications.
    Fleury Bear?...if they are all with flowers?
    All the best. Enjoy that lovely island xx

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    1. Ah yes, I have indeed heard about Spoons, a very good analogy, and one I have had to get used to for the last 10 years...but since September I felt finally like myself again after so long going on the steroids, which I actually went on for another problem, so it was a real revelation! Difficult to know what to do for the best...at the end of the day it has to be quality of life I think.

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  3. Really sorry to read you're struggling at the moment. I'd be inclined to go back on the steroids if it were impacting on me so much, but I'm assuming there's a reason for coming off them and only you know what's really best for you.

    The teddies really are stunning and you manage to capture a lovely facial expression on every one. I quite like a simple 'Serenata Teddy'. It sounds like a collectible range :)

    Hope you have a better day today. xx

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    1. Doctors don't like to keep you on steroids for too long as they can damage your bones... this is my second attempt to wean off them, I am hoping that I will start to feel better soon.

      I love the name!

      A very quiet day today sewing, the weather wasn't the best so I stayed inside. :)

      Thank you for your kind wishes.

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  4. Is it supermarket bread you have or home made? Friends have said the method used for the supermarket bread upsets their guts, so to speak. Home-made - no such problems. Steroids are the devil's medicine - sadly, when you need them, they can be a wonderful cure but of course this has to be balanced against the side-effects. For me, they give me huge energy but I get so desperately hungry even wallpaper paste looks moreish! Plus after a couple of days I am awake day and night, sleeping every other night from sheer exhaustion. BUT, without them, asthma flare-ups would have me in hospital. You have my sympathies and I hoe you can work out the right regime with them.

    Love the new bears. Can't think of a good name - Goldilocks Bears? Here in Wales they might be called Cwtch bears! Cwtch meaning cuddle.

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    1. Thank you for your really informative comment. Sorry you have such bad asthma, it can be pretty scary!

      It is home made bread, I can't eat supermarket bread at all.

      I actually lost weight on steroids as I was finally able to walk and exercise like I used to and wanted to without pain, it was a real revelation to me to be honest. I didn't have any problems being on them at all as far as I am aware. When I first started on them at the high does, then yes I was a bit buzzy for a few days until I got used to them. I don't sleep well anyway, and if anything I am worse now I am off the steroids than when I was on them.

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    2. I assume it's Fibro you have then? Several friends of mine have this and it can be the pits, by the sound of things. Sorry you are worse off them - perhaps a "maintenance dose" might be prescribed?

      I hope that forgoing the bread helps you. Have you tried Probiotics for rebalancing your gut bacteria? A lack of the right guys in your gut seems to be at the bottom of so many things.

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    3. No it is not fibro, it is chronic nerve pain as a result of a surgery I had 10 years ago to decompress an artery and nerve. Unfortunately the pain has spread and I now get nerve pain in my feet and other places. I was supposed to be seeing someone in May for further tests and to see also if there is a genetic problem going on, but that has now been postponed until September.

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  5. Love the bears, the Gaelic for bear is Mathan. There are so many issues around steroids, we have the same struggles with my husband. Look after yourself.

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    1. Thank you, that is really interesting. I love learning different names in other languages.

      :)

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  6. I hope you can speak to your doctor and find something that works for you. So frustrating for you to feel like this, especially after feeling so well. The bears are lovely, and I am in awe at how quickly you are able to make them.

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    1. Thanks Kathryn. Yes very frustrating.

      I don't get much else done when I am absorbed in making bears! ;)

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