I meant to write a blog post to wish all my lovely readers a very Happy Christmas, but that didn't seem to happen unfortunately. We had a lovely Christmas Day at my son and daughter in law's house. They cooked a lovely meal for us all and we had a great day. I made my traditional pavlova and fresh fruit salad.
The only problem was I didn't get to bring any home as they kept what was left over, so I missed out on my 'traditional' Boxing Day Pavlova breakfast!
The bags of pressies has arrived.
I didn't get any photos of us opening them. In fact I got very few photos this year.
I did take some of the Christmas table, but neglected to take a group photo of us all like I usually do, and also forgot to take a photo of the food!
We didn't get to taste this wonderful gingerbread house that the Sailor made.
I hope everyone had a lovely day with family and friends or however they spend it. Enjoy the next few days with the lead up to the New Year.
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Today I feel a bit deflated...not sure if it is because it all seems so quiet here in our house and the weather is just so horrible after the lovely day it was yesterday. It is very dark and dismal.
I came off my steroids completely a few days ago and I have to say I have not felt good since the dose has been decreasing. Pains that I had hoped were gone for good have come back. My feet are very painful again, my back hurts and I have had a a few bad flare ups in my right side. Obviously the steroids were helping them as well as the Mesenteric panniculitis I was on them for. I saw the specialist on 20th December for the results of the CT Scan and a couple of the nodes have reduced in size and the others have remained stable. So now it is just a waiting game to see how I get on without medication. I told him how good I had been feeling on the steroids and how they had helped the other pain issues I had/have and he said that proves they are an inflammatory response to something, so it is a case of trying to determine what is causing it...and he has written a good letter for me to also take to the Pain Clinic in January, although I have to say I am not confident they will take anything on board as they seem relatively disinterested, and I always have to wait so long between seeing anyone and also getting any results of tests they might deign to do.
Having had a taste of how good I can feel and also how I 'used to be' pre pain I want to feel like that again! I have had a few good months, and I feel like I have just gone right back to how I was before I started the treatment but in a way it feels worse as I realise how bad it is, and how good I 'could' feel if we could just sort out what is going on and treat it.
I think I am going to have a break from blogging for a little while...hopefully just until the New Year...I just don't feel great, and don't want to be harping on about it.
The Christmas setting, pav and fruit salad look lovely. Sorry you are feeling unwell since cutting down (then out) your steroids. Hope you can get something sorted at the Pain Clinic.
ReplyDeleteSo sorry to hear your pains are returning and I really hope the cause will soon be found. Living with pain is not easy (my husband suffered a lot with pain).
ReplyDeleteI think you decorated your pav beautifully. I thought I was a bit odd in enjoying pavlova for breakfast, so I would be thrilled to join you in eating it!
Your Christmas looks lovely and I think I'd have hung on to the pavlova as well, it looks delicious.
ReplyDeleteI'm really sorry to read you're not feeling at your best. It must be so frustrating knowing that there's medication out there that can help, but I assume you can't stay on steroids forever?
Really hope you start to feel a bit better in yourself even if not you're not 100% physically. A break from things can do us the world of good, but hope you're back blogging again soon. Take care of yourself. xx