Gosh what an amazing weekend we had. You couldn't have asked for better weather really. The temperature was lovely and warm, but not too hot, the sky was blue and the sun shone beautifully in the sky. I spent a really lovely day yesterday sitting out in the garden most of the day crafting. I'd taken the dogs for a walk in the morning. I've started doing two walks. One shorter one with both dogs, and then taking Percy home, who still lacks a bit of stamina due probably to his continued chemo treatment, and then going on a more brisk walk with Stanley.
I had my CT Scan results back on Friday and I am still a little bit shell shocked and not completely sure how I feel about things. I have a mixture of relief that they HAVE actually found something as you start to question yourself when the doctors keep doubting you. But also a bit concerned about the fact that they have.
It seems I have something very rare called Sclerosing Mesenteritis (also known as Mesenteric Panniculitis which can be genetic or an autoimmune disorder. I was also low in folate, which my bloods have actually indicated for some time if only the other doctors had looked at the whole picture! So this doctor has started me on a course of Folic Acid for the folate and a two month course of steroids for the SM. I can't say I am overjoyed at having to take the steroids, I don't like drugs at the best of times...and as I was actually not feeling too bad and haven't done for the last couple of weeks, I was wondering whether I should just try more natural forms, but as I am impressed with this doctor and how thorough he is I thought I had better. He is going to review me in two months time and retake the scans to see if the SM has improved etc... I so hope so!
I now wonder if both these two things, the low folate and the SM have actually been affecting me for some time. So it will be interesting to see how I go. I started the steroids on Saturday morning and the folate Friday afternoon. I haven't slept properly the last couple of nights and I don't know if that is the steroids, or just the heat and thoughts churning around in my head.
Hopefully though we are on the right track and my health will start improving.
I'm going to have to watch even more closely what I eat now with being on steroids, so this is a good time to also focus on that along with regular exercise.
Well I have a list of things I want to get done today, so better get on.
It is the start of a new week, a positive attitude and a way forward.
Wow, your roses are beautiful. It's a double edged sword when something is found isn't it, but hopefully you'll feel the benefit of being on the tablets. Totally frustrating though when something could have been detected earlier. Have a lovely day. xx
ReplyDeleteThank you. Yes it is indeed, feeling hopeful though that now I will make some improvement. It is frustrating that some of the signs have just been continually ignored though. I think part of the problem is they keep widening the perimeters of 'normal range' and never look at the whole picture, but just each individual marker.
DeleteMy goodness your roses and fushcias really are stunning.
ReplyDeleteThank you :)
DeleteI am delighted that you finally have a diagnosis, now proper treatment can be started. Beautiful photos as always, sounds like a wonderful weekend.
ReplyDeleteI'm pleased to, and hoping that now I can start getting better. Thank you, it was a lovely weekend. Today (Tuesday) is another stunning day and have just come back from a lovely walk with the dogs.
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